Every year on May 12, the world comes together to recognize World Fibromyalgia Awareness-dedicated to shedding light on a condition that millions suffer from silently.

Fibromyalgia is often called an “invisible illness” because those affected may look well on the outside, while battling widespread pain, fatigue, and neurological symptoms on the inside.

As a neurologist and neurosurgeon, I frequently encounter patients whose lives have been disrupted by chronic pain syndromes, especially fibromyalgia.

Many are misdiagnosed or misunderstood for years. This article is an effort to explain fibromyalgia from a neurological point of view, highlight the latest research, and offer hope and guidance to those affected.

Read more : How a Brain and Spine clinic can Help with chronic Back pain

What Is Fibromyalgia?

 Fibromyalgia is a chronic neurological disorder characterized by:

Widespread musculoskeletal pain

ㆍFatigu
ㆍSleep disturbances
Cognitive issues (“fibro fog”)
Heightened sensitivity to pain (hyperalgesia)
Mood disturbances like anxiety and depression

The condition affects approximately 2–4% of the global population, predominantly women (80–90% of cases), though men and children are not immune.

Read more :Neurological disorders in children Early detection and Intervention

Why Is It Called a Neurological Disorder?

Recent studies show that fibromyalgia involves abnormal pain processing in the central nervous system (CNS)—the brain and spinal cord. Functional MRI (fMRI) and PET scans reveal that people with fibromyalgia have overactive pain receptors and altered neurotransmitter activity.

In simple terms:

ㆍNormal pain signals are amplified.
ㆍThe brain perceives pain more intensely than it should.
Even mild stimuli—like pressure from clothing—may trigger discomfort.

That’s why fibromyalgia is not just a muscular problem, but a neurological one involving the pain-regulating centers of the brain.

Ganesh

Dr. Ganesh Veerabhadraiah

Consultant – Neurosurgeon, Neurointerventional Surgery, Spine Surgeon (Neuro)
23+ Years Experience Overall (17+ years as Neuro Specialist)

Available for Consultation: Jayanagar 9th Block & Kauvery Hospital, Electronic City 

Symptoms That Often Go Unnoticed

Patients with fibromyalgia may experience a wide range of symptoms beyond pain:

1. Fatigue – Persistent tiredness, even after full rest.
2. Sleep disturbances – Light, non-restorative sleep with frequent awakenings.
3. Cognitive dysfunction (“Fibro fog”) – Memory lapses, difficulty concentrating, and slowed thinking.
4. Sensitivity to light, sound, or touch
6. Tingling or numbness in hands and feet
7. Jaw pain (TMJ disorders)
8. Irritable bowel syndrome (IBS)
9. Migraine and chronic headaches
10.Depression and anxiety

These symptoms often mimic or overlap with other disorders, leading to delays in diagnosis.
Read more :
How to sleep better with Lower Back Pain

How to Protect Your Brain from Hypertension

1. Know Your Numbers

• Ideal blood pressure: Below 130/80 mmHg
• Get it checked at least once every 6 months if you’re over 30
• Use home BP monitors if you’re already diagnosed
 

2.Follow Your Treatment Strictly

• Take medications every day, as prescribed
• Don’t stop medicines just because you feel fine
• Have regular follow-ups with your doctor
 
Neglecting to take prescribed medication often increases the risk of experiencing a stroke.
 

3. Adopt a Brain-Friendly Lifestyle 

a) Diet
• Low salt: <5 grams/day (avoid packaged foods)
• Include potassium-rich foods: banana, spinach, coconut water
• High fiber: fruits, vegetables, whole grains
• Avoid red meat, fried food, and excess sugar
 
b) Exercise
• At least 30 minutes/day of walking, swimming, cycling
• Helps reduce BP, improves brain circulation
 
c) Sleep & Stress
• Aim for 7–8 hours of sleep
• Practice yoga, meditation, or breathing exercises
 
Stress raises cortisol and BP and harms brain function over time.
 

4. Limit Alcohol and Quit Smoking

• Alcohol increases BP and damages brain vessels

• Smoking stiffens arteries and doubles stroke risk Special Tips for Elderly Patients

• Try setting reminders or using medication organizers to help ensure you take every dose on time.
• Involve family in BP monitoring
• Ensure hydration dehydration can worsen BP and lead to confusion
• Watch out for falls or imbalance they could be signs of mini-strokes
 

Key Takeaways

• Hypertension is the leading cause of stroke and vascular dementia
• Brain damage from BP is silent but serious
• Early diagnosis, consistent treatment, and healthy lifestyle can prevent irreversible damage
• If you’re over 40, make brain health a priority — control your blood pressure now

What Causes Fibromyalgia?

The exact cause is unknown, but several triggers and contributing factors have been identified:

• Genetic predisposition – It tends to run in families.
• Stress or trauma – Physical injury, emotional abuse, or surgery may act as triggers.
• Infections – Viral illnesses like Epstein-Barr or flu.
Central sensitization – A key theory where the CNS becomes hypersensitive to stimuli.
Sleep abnormalities – Poor sleep worsens pain perception.
Hormonal imbalances – Altered levels of serotonin, dopamine, and norepinephrine.

How Is It Diagnosed?

Fibromyalgia is a clinical diagnosis—meaning there is no single test to confirm it. Diagnosis involves:

• A detailed history and symptom assessment
Ruling out other conditions like hypothyroidism, lupus, or rheumatoid arthritis
Checking for widespread pain in at least 4 of 5 pain regions, lasting more than 3 months
Evaluating severity of fatigue, sleep, and cognitive symptoms

Many patients go through multiple specialists before receiving a correct diagnosis, often being mislabelled with psychological issues.

A Neurologist’s Approach to Fibromyalgia

As a neurologist, I focus on identifying the CNS dysregulation and differentiating fibromyalgia from other neurologic or musculoskeletal disorders. Our role involves:

• Excluding neuropathies, myopathies, multiple sclerosis, and chronic fatigue syndrome

• Evaluating nerve conduction studies and MRI scans (if needed)
• Managing associated migraines, restless leg syndrome, or seizures
Addressing cognitive symptoms like brain fog with strategies to improve focus

Importantly, neurologists validate the patient’s experience, countering the harmful myth that “it’s all in your head.”

Treatment: Multimodal and Personalized

There is no permanent cure, but fibromyalgia is manageable with the right combination of strategies:

1.Medications

• Neuromodulators: Pregabalin, Gabapentin
• Antidepressants: Duloxetine, Amitriptyline (work on pain and mood)
Muscle relaxants: Cyclobenzaprine
Sleep aids: Melatonin or low-dose amitriptyline
Pain relievers: Paracetamol, but avoid opioids (ineffective long-term)

2.Physical Therapy & Exercise

• Gentle aerobic exercises like walking, swimming, yoga
• Stretching and low-impact resistance training
Regular movement reduces stiffness and boosts endorphins

3.Psychological Support

• Cognitive Behavioral Therapy (CBT) to manage stress, pain perception
• Mindfulness, meditation, guided relaxation
Addressing anxiety and depression early is crucial

4. Lifestyle Adjustments

• Regular sleep schedule – aim for deep restorative sleep
• Balanced diet – anti-inflammatory foods, less sugar/caffeine
Stress reduction – breathing exercises, journaling, therapy

5.Complementary Therapies

• Acupuncture
• Chiropractic care
Massage therapy
Biofeedback

While not curative, many patients report relief with these approaches.

What Patients Must Know
1.It’s Real

Your pain is real, even if not visible in scans. You are not imagining it.

2. It’s Neurological

The problem lies in how your brain processes pain, not just in the muscles.

3. It Takes Time

Managing fibromyalgia is a long-term journey, not a quick fix.

4. Support Is Vital

You need a care team, including neurologists, physiotherapists, psychologists, and family support.

5. You Can Lead a Full Life

With the right management, many patients return to work, travel, exercise, and enjoy their life again.

Fibromyalgia and the Indian Context

In India, fibromyalgia is underdiagnosed. Many people, especially women, are told to “ignore it,” “adjust,” or blamed for “overreacting.” Cultural stigma worsens their suffering.

Awareness among physicians and the public is improving, but more education, empathy, and access to multidisciplinary care is needed.

When to See a Neurologist Consult a neurologist if:

• Pain persists despite medication and normal tests
• You have numbness, tingling, or weakness
Cognitive symptoms interfere with work or life
There is concern about stroke, epilepsy, or MS
You want a confirmed diagnosis and plan

Message about Fibromyalgia

Fibromyalgia may not leave visible scars, but it deeply affects lives. On this World Fibromyalgia Awareness Day, let’s pledge to:

• Listen to those who suffer silently
Educate others about this complex neurological condition
Support research and advocacy
Empower patients with compassion and science

If you or someone you know lives with fibromyalgia, know this: you are not alone, and help is available. Let’s work together to ease the burden and restore hope—one step at a time.

FAQs:

1. What is fibromyalgia?

Fibromyalgia is a chronic neurological disorder marked by widespread pain, fatigue, sleep issues, and cognitive difficulties, affecting 2–4% of the population.

2. Why is fibromyalgia called a neurological condition?

Because it involves abnormal pain processing in the brain and spinal cord, not just muscular issues.

3. What are the common symptoms of fibromyalgia?

Symptoms include chronic pain, fatigue, sleep disturbances, “fibro fog,” heightened sensitivity, migraines, and mood changes.

4. How is fibromyalgia diagnosed?

There is no single test. Diagnosis is based on symptoms, ruling out other conditions, and assessing widespread pain lasting more than 3 months.

5. Can fibromyalgia be cured?

There’s no permanent cure, but fibromyalgia is manageable with medications, physical therapy, psychological support, and lifestyle changes.

6. When should I see a neurologist for fibromyalgia?

If symptoms persist, interfere with life, or involve numbness or cognitive problems, a neurologist can help confirm diagnosis and guide treatment.

Neurowellness-Brain and Spine care

105 Replies to “Fibromyalgia: Understanding the Invisible Pain”

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